Heart Failure Registry

Dear Colleagues,

The Asian Pacific Society of Cardiology (APSC) is joining with the European Society of Cardiology to conduct the APSC-ESC Heart Survey Heart Failure pilot registry.  The APSC invites you to participate in this much-needed registry by becoming a participating center and enrolling patients.

Key details about the APSC-ESC Heart Survey Heart Failure pilot registry:

Objective: To describe the clinical epidemiology of outpatients and inpatients with heart failure and the diagnostic and therapeutic processes in patients in Europe and in the Asia-Pacific.  Further details regarding the objective and specific aims is on pages 3 and 4 of the protocol.

Study Design and Methods:  Consecutive patients will be enrolled during 1 day per week for 8 consecutive months and followed for one year.  Follow-up will be conducted at 3, 6, and 12 months. Further details are on pages 2 and 3 of the protocol. Investigator-initiated registry.

Web-based data entry for centralized data collection at the ESC office in France.

Patient identity is anonymous and accepted practice is used to maintain patient confidentiality.  A unique user id and password will be provided to each investigator. For investigators who do not have the capability for web-based data entry, a copy of the paper case report form (CRF) is to be mailed to the APSC Permanent Secretariat for it to perform the data entry.

Data analysis:  During the recruitment phase, benchmarking data will be provided from the ESC.  Funding of further data analysis will be through an unrestricted educational grant.

Publication: The ESC will publish the main article presenting the data from the Euro Heart Survey Heart Failure pilot registry.  Thereafter, the database is available for further analyses to all participating investigators. The APSC intends to publish an article with the specific regional data.  Please see page 9 of the protocol for full details.

National Coordinator: The APSC, like the ESC, will have a National Coordinator who is responsible for translation, as needed, of the protocol, data set, and informed consent form. The National Coordinator is also responsible for inviting other investigators to join the registry and for the timely and secure transfer of the paper CRFs to the APSC Permanent Secretariat.

On behalf of the APSC and its Heart Failure Scientific Council, I thank you for your participation in APSC-ESC Heart Survey Heart Failure pilot registry.  Your hard work and that of your colleagues and hospital to obtain this epidemiologic data is greatly appreciated for its contribution to understanding heart failure in the Asia-Pacific region, and will support our next steps to improve health care and treatment for our patients.

Akira Matsumori, MD, PhD, FACC, FAHA, FESC                                                                                         

Chair, APSC Heart Failure Scientific Council                                               

Chair, APSC Scientific Advisory Board

President-Elect, APSC 

Heart failure registry form : www.hfregistry.com